Standards of Care for patients with SCI and dysfunction, ListServ Summary, July 2026

Rehab administrators answer questions regarding Standards of Care for patients with SCI and dysfunction. IPRC archives information collected by the Pediatric Rehab Administrator’s ListServ as a public service to the entire Pediatric Rehabilitation Community. All information is posted in summary format and has been de-identified. Search through past queries for responses to rehabilitation related questions.

Original Question(s):

1. Does your institution have formal standards or clinical practice guidelines for the care of patients with SCI/D? If yes, which phases of care are covered? (select all that apply)
2. Is there a standard set of outcome measures used for patients with SCI/D at your instituition?
3. What outcome measures are routinely collected?
4. At what points are outcome measures collected? (select all that apply) Are standardized lengths of stay established for patients with SCI/D based on injury severity?
5. If yes, LOS is standardized based on: (select all that apply)
6. How frequently are LOS targets reviewed or adjusted?
7. How frequently are patients with SCI/D assessed using the ASIA Impairment Scale? (select all that apply)
8. Do all patients with SCI/D receive a standardized education program? What education topics are routinely provided? (select all that apply)
9. What barriers limit standardization of SCI/D care at your institution? (select all that apply)
10. What specialized or adaptive equipment is available for use by patients with SCI/D? (e.g. universal cuffs, leg loops, bath equipment, standers, custom wheelchairs, etc.)
11. How do you ensure patients with SCI/D receive the adaptive equipment they need for discharge? (select all that apply)
12. Does your program have a school coordinator for patients with SCI/D? 
14. What resources do you provide for patients with SCI/D to return to school? (select all that apply)
15. Is there anything else you would like to share regarding the standardization of care for patients with SCI/D at your institution?

Summary of Responses (De-identified)