Neuro-Oncology, ListServ Summary, May 2026

Rehab administrators answer questions regarding Neuro-Oncology Benchmarking. IPRC archives information collected by the Pediatric Rehab Administrator’s ListServ as a public service to the entire Pediatric Rehabilitation Community. All information is posted in summary format and has been de-identified. Search through past queries for responses to rehabilitation related questions.

Original Questions:

1. What is your discipline?
2. What setting do you practice in?
3. Please report how often you use the following outcome measures with this population: Pediatric Balance Scale/Berg
4. Please report how often you use the following outcome measures with this population: 6 Minute Walk Test 
5. Please report how often you use the following outcome measures with this population: Postoperative Pediatric Cerebellar Mutism Syndrome Scale 
6. Please report how often you use the following outcome measures with this population. .10 Meter Walk Test 
7. Please report how often you use the following outcome measures with this population. .Selective Assessment and Rating of Ataxia
8. Please report how often you use the following outcome measures with this population. .Dynamic Gait Index
9. Please report how often you use the following outcome measures with this population. .Peabody 
10. Please report how often you use the following outcome measures with this population. .BOT-3
11. Please report how often you use the following outcome measures with this population. .Pediatric Physiatric Posterior Fossa Syndrome Scale 
12. Please report how often you use the following outcome measures with this population. .Pediatric Evaluation of Disability Inventory 
13. Please report how often you use the following outcome measures with this population. .International Cooperative Ataxia Rating Scale 
14. Are there any other outcome measures that were not listed above that you routinely perform with this population?
15. How often are outcome measures administered per patient by discipline?.PT 
16. How often are outcome measures administered per patient by discipline?.OT
17. How often are outcome measures administered per patient by discipline?.Speech
18. How often are outcome measures administered per patient by discipline?.Psych
19. How often are outcome measures administered per patient by discipline?.PM&R
20. How often are outcome measures administered per patient by discipline?.Other
21. If you answered “other” to question 7, please explain when the outcomes are administered.
22. Any other additional comments you would like to add based on your response to question 7.
23. How long does your therapy service line follow these patients (can be across multiple settings)? Click as many that applies to your institution. 
24. Is there any specific protocol you follow for a specific neuro-oncology diagnosis? If so, please explain. (For example: timing from when first contact and frequency) 
25. Does your institution have proton/photon therapy? Do your scheduled therapy times differ because of radiation therapy? If so, can you explain. 
26. If a patient is diagnosed with Posterior Fossa Syndrome, does your institution have specific outcome measures to track their severity? 
27. “Is there anything else you would like to tell us about the way your institution manage/follows patients with neuro-oncologic diagnoses?”

Summary of Responses (de-identified)